There are no 0 pain days

Filed in Fibromyalgia 0 comments

I sometimes think people forget that I have Fibromyalgia and that I am in pain every single day of my life.
There are no zero pain days for me, there are different levels of pain I go through each and every day of my life I just choose not to say things about it all the time because I don’t want the pity poor Tami looks and chatter to start.

Most days I wake up and can barely move, the mere thought of getting out of bed each day becomes a task.
And because I am on such a heavy dose of drugs it takes awhile for my body to actually begin to function.
Some people see this as me being lazy, or sleeping too long cause I do nothing everyday…it couldn’t be further from the truth.

Speaking of sleeping this is a perfect time to enlighten some as to one of the many curses of Fibromyalgia¬† .. CFS = Chronic Fatigue Syndrome…which means most days I can’t for the life of me fall asleep and when I do sleep I don’t sleep well and then my body has even more pain and I end up being exhausted all day long.
Then when and if I do manage to get a good night sleep I sleep longer then most people I can go anywhere from 10 to 15 hours of sleep….BUT please keep in mind that before those nights I have had many nights of only 4-6 hours sleep and my body by this point is so tired it shuts itself right down.

I am actually thankful to those 10-15 hour days, it’s one of the only times I actually wake up feeling pretty rested. My pain levels are lower as well on the days that I get the most sleep.
But most just see it as me being lazy and sleeping my life away….think again.

I don’t think many understand how their criticism actually hurts me, I don’t enjoy having Fibro and CFS but I have them none the less and I have 1 of 2 choices…lay down and give up OR make the best of what I’ve got.
I choose to do the best with the cards I have been dealt and really I don’t think I do to bad of a job getting through the days.

Yes I can sleep until 3pm in the afternoon but instead of judging that fact ask what time I actually fell asleep! some nights I can’t get to bed til 9am in the morning so if 3pm is my wake up time then so friggin be it!
And that’s only 6 hours sleep which means my body at this point is NOT well rested and I am going to be in even more pain…it also means my drugs are not fully out of my system and I am groggy on top of in pain.

I am so tired of people passing judgement on what they “think” they know but I will tell you this .. EVERY Fibro patient is different.
Fibromyalgia effects different people in different ways, no two people are alike in how they have symptom’s or how they deal with their pain.

So instead of passing judgment try to be a little more understanding!

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Posted by Tami Croft   @   28 July 2010 0 comments

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