I live in silence

Filed in Fibromyalgia 0 comments

Many people know nothing about Fibromyalgia or only “think” they know what it is.

For many people living with this chronic pain disorder it is frustrating because we live in silence.

I live in silence because I don’t want your pity.
I live in silence because I don’t want you to look down at me.
I live in silence because I know you can’t fully understand.
I live in silence because people make me think that they really could care less.
I live in silence because I don’t like admitting I am disabled.
I live in silence because you once referred to me as lazy.
I live in silence because you once told someone it was all in my head.
I live in silence because you tell people I’m not really disabled.
I live in silence because people look at me like I am ok when I am not.
I live in silence because you don’t take the time to get to know more about me.
I live in silence because I’m afraid to let people know the truth.
I live in silence because I am no longer the person I once was.
I live in silence because I’m afraid to be sad, you make think I am weak.

These are just some of many reason’s more people do not share what it’s like living with Fibromyalgia.
Just because I “LOOK” ok does not mean that I am.
I am in pain everyday, some days so severe I can not even be touched.
People’s voices, sounds and one of my favorite things MUSIC now hurt my ears.
If you could “SEE” my pain I would look bruised all over my body.
Along with Fibro come Chronic Fatigue Syndrome, I have troubles sleeping, staying asleep and just getting to sleep.
I am on a drug regimen of over 7 different pills a day, and the one drug that does help my pain to a larger extent in NOT covered by the Ontario Disability Program so I must take a drug that barely works instead.
I cry myself to sleep on a regular basis because some people just don’t get it.
They don’t understand just how much pain this disease causes me and have no trouble referring to me as lazy or a bum who just does not want to work.
BUT what you do not see is me actually WORKING MY ASS OFF to raise a child…with that comes many responsibilities.
I cook, I clean, I bath cloth and change him. I take care of myself and my home.
I pick up after more then one person and YOU may not see that as work but to me it’s excruciatingly painful just to do those things.

So next time you want to pass judgement on me, look down on me, talk about me behind my back GET THE FACTS!
If you have no clue what your talking about shut your face because your not doing anyone any favors.
It’s people like you who make people like me SUFFER IN SILENCE!

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Posted by Tami Croft   @   26 January 2012 0 comments

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